Touched by Angels: Life with Hydrocephalus Paperback -

From the publisher

If you or a loved one suffer from hydrocephalus, this book is for you. Filled with powerful and touching stories, helpful information, encouragement and wisdom, Touched by Angels helps you walk this path with dignity, power, and the strength of community.

Within these pages, author and hydrocephalus survivor Robin Holloway shares her story of struggle, uncertainty, and triumph. You'll tag along as she tells you about the day she learned of her disorder, the time she earned her college degree, and the fearful week she learned she had an inoperable tumor at the base of her brain. Because of her years of experience with the uncertainty of a fragile tomorrow, she is able to share her wisdom with a strength and humor that will refresh your soul and perhaps even give you direction on your journey.

Key facts to know about hydrocephalus:

• Hydrocephalus is a common birth defect.
• 1 in 200 children worldwide are diagnosed either prenatally or within a few weeks of birth.
• 1 in 1000 children in the United States are diagnosed.
• It can also develop in adulthood as the result of a brain injury or a disease.
• It is commonly referred to as 'water on the brain.'
• It occurs when the neural tubes in the brain do not form properly.
• As common as this birth defect is, medical technology to treat it has lagged far behind thos of other conditions with no significant advances in treatment protocols since the 1960's.
• Families living with hydrocephalus need help more than ever before because of rising medical costs and ineffective treatments.